Aktuelles
Aktuelle Termine :
17.4.2010 in
Innsbruck - Elterntag Ketogene Diät
Einladung zum Elterntag in Innsbruck
Programm
Elterntag
6.10.2010 – 8.10.2010 Edinburgh, Scotland
Global symposium on the Dietary Therapies for Epilepsy and Other
Neurological Disorders for Professionals
Näheres unter
www.charliefoundation.org
9.10.2010
Edinburgh, Scotland
Family Conference for the Dietary Treatment of Epilepsy Glut1 DS
Näheres unter
www.charliefoundation.org
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Zwei neue Produkte
für die ketogene Küche:
Die Fa. Keto Medical Foods Trading GmbH (vormals V.
Blum GmbH) bietet auf dem europäischen Markt ab sofort zwei neue
Produkte für die ketogene Küche an:
KETOVOLVE™ und KETOBAKE™
Näheres unter:
www.keto-foods-trading.com
E-Mail :
office@keto-foods-trading.com
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Optimal clinical management of children
receiving the ketogenic diet: Recommendations of the International
Ketogenic Diet Study Group.
Optimal clinical management
- Bericht 1
Optimal clinical management
- Bericht 2
Optimal clinical management
- Bericht 3
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'Within days she seemed calmer'
A UK trial has for the first time shown a ketogenic diet can
reduce fits in children with epilepsy, compared with standard treatment.
The results prompted the researchers to call for wider availability of
the diet on the NHS.
Rachel Farrand, 38, from Redhill in Surrey, says she feels incredibly
lucky to have been able to get her six-year old daughter, Ella, on to
the diet.
Ella was a healthy baby until the week before her first birthday, when
she was
admitted to hospital with pneumococcal meningitis.
The infection left her profoundly deaf and, although she was fitted with
a cochlear implant to restore her hearing, it became obvious she also
had learning difficulties.
She also started to have seizures - where her arms would extend and
stiffen - and just over a year after her meningitis she was diagnosed
with epilepsy.
| I can now make up a ketogenic meal quite quickly, it's
just become a way of life. Ella's mother, Rachel Farrand
|
The seizures seemed to happen after the sudden
appearance of people and objects - literally when Ella was startled -
and she would quite often fall to the ground.
She would be dazed afterwards and if a few fits happened close together
she would need to have a sleep.
An EEG of the brain showed her brain waves were "very abnormal", Rachel
explained.
Anti-epileptic drugs did nothing to control her symptoms and turned her
into a "zombie".
'Different child'
Shortly after her fourth birthday, the seizures stopped and Ella was
able to concentrate and was much more interested in what was going on
around her, as well as responding to sounds.
But after a few months the seizures came back and, having seen the
difference in her when she was seizure-free, her parents decided to try
the ketogenic diet.
Ella has to eat three-and-a-half parts fat to every one part protein and
carbohydrate.
She has three strictly-controlled meals and two snacks a day, which all
have to be measured to be the correct ratio and the correct number of
calories.
"Within days she seemed calmer and began sleeping better," says Rachel.
"Her concentration and focus improved and once again she was like a
different child."
A TYPICAL DAY'S FOOD
Breakfast - mushroom omelette, small bowl of raspberries
and clementines, and a hot chocolate
Lunch - thai stir fry with quorn, courgette, onion and
peppers and a strawberry milkshake
Dinner - roast chicken with cabbage, broccoli and carrots,
small bowl of strawberries and vanilla ice cream
Snacks - ketogenic coconut cookie (with ground almonds
instead of flour), ketogenic chocolate (plain chocolate mixed
with creamed coconut) |
After six weeks on the diet her seizures stopped
and tests showed her brain activity was much calmer.
"It's tricky at first but once you get in the swing of things it's fine.
"I can now make up a ketogenic meal quite quickly, it's just become a
way of life."
The family make sure they do not snack in front of Ella, and her younger
brother Alfie is adept at having "sneaky snacks" out of view of his
sister.
Ella's parents were able to wean her off her remaining anti-epileptic
drugs with no adverse effects.
"She continues to be hard work, and her progress will always be slow and
erratic, but losing the seizures means we have one less thing to contend
with," Rachel says.
Recently Ella was diagnosed with premature puberty - another result of
the meningitis - and as a result her seizures started to come back,
although they are much less severe.
Rachel hopes they will be able to get back on track soon.
"We're still seeing such improvements and when we took her off the drugs
we saw the little girl underneath - she's much brighter and sparkier.
"We were so lucky - people fight for years to get their children on the
diet. Hopefully with this research the NHS will put more money in."
Story from BBC NEWS:
http://news.bbc.co.uk/go/pr/fr/-/2/hi/health/7380655.stm
Published: 2008/05/02 23:19:26 GMT
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